I
turned age 66 in 2020. I started this site ~2002, partly as a way to
regain use of my right hand through typing. The site had to be simple
to acommodate my limited dexterity.
I’ve been outdoorsy since my pre-teen years, but college, grad school,
and gainful employment muted my adventures. I lived 14 years in upstate
NY, 13 years in MA, 16 years in NM, and 24 in NV (as of 2022, my
current home), and hiked the mountains of each state and its neighbors.
My life has changed a lot since 2002. I had a stroke when I was 47,
most likely due to a neck injury and the subsequent tearing of a
vertebral artery and formation of a clot on an arterial dissection. The MDs gave me 50-50 chance of survival. The stroke
destroyed the right-side cerebellar SCA territory and part of my
brainstem; I had no balance, and couldn’t really speak or walk. I am
partly paralyzed on my entire right side, including my voicebox and
tongue, and have no true proprioception in my right hand and foot. To
this day, I simulate the balance that would normally be supplied by my
cerebellum, through use of my vision and intellectual cues. My
voice is fairly normal, except when I am tired, and I mumble some. In
2002, I walked 200 miles on curbs, and regained functional balance, but
my balance disappears if I am in dark too long, since I have to know
where the horizon is for the intellectual cues to work. I was offered
the chance to be declared disabled, which I turned down, because I had
no intention of acting disabled.
And above all, I now need more sleep, because my cerebrum gets so very tired with this inefficeint substitution.
Please understand I must really concentrate to do simple things,
because I must use my upper brain (cerebrum) to stead for my missing
cerebellum. People tend to talk a lot in tense climbing
situations, and I have to ignore them or risk making a bad mistake. I
am not being impolite, I am trying to survive. Many people say, "well, if I'm asking too many questions, you should tell me to stop!" That's the problem -- my brain gets locked and I can't talk. The lock happens very quickly once I get saturated.
I’ve had lots of trying medical conditions since 2002; but the most
significant was a whiplash injury from mountaineering in 2018.
The
accident tore an artery as it went through my skull and into my brain,
creating a dAVF as a
short-circuit for blood to reflux in my cortical veins, and around my
brainstem at the marginal sinus. This condition left me at a
high risk for hemorrhagic stroke (I also had intense vertigo at times,
and loud pulsatile tinnitus).
I had two endovascular brain surgeries in
2018, and the first one went a bit awry, so that a branch of the
left-side middle meningeal artery had to be blocked. This artery has
part of the blood supply for the left eye, and I lost peripheral vision
and part of my balance. I had expressive aphasia, and though
intellectually sharp, I was occasionally unable to understand people or
make coherent sentences, and could not tell you who I was. And I began
to have frequent scintillating
scotomas (fortification spectra) that greatly disrupted my vision. I
learned to deal with these while climbing, but not while driving. The
visual effects have subsided somewhat, and in April 2021 I drove
more than 150 miles in a day for the first time since 2018. I’ve
learned which conditions bring on the aphasia; I didn't have another
episode for 2 years, then had two in 2022, when I was hiking solo.
However, I seem to know how to recover from the aphasia, and the recent
episodes lasted just minutes.
In 2019, I had a fairly routine prostate operation, but got a very bad
abdominal infection as a consequence. For my age group and this
particularly nasty pathogen strain, the mortality is 9%. I went through
3 courses of antbiotics, and at one point thought death would be OK
just to end the pain. The cure took 3.5 months, and even though I
forced myself to eat and exercise, I lost 8 lbs.
My last notable condition was severe COVID-19 (possibly alpha) in 2020-2021, which put
me on serious
meds and supplemental oxygen. During that time I lost 17 lbs, from 142
to 125. I was already very lean, and medical consensus was that my good
physical condition saved my life. There is good evidence (from
peer-reviewed animal studies) that the intensity of COVID is related to
the initial dose; my initial dose was very high, from a
young adult who coughed spittle into my face.
During COVID, I started
passing a kidney stone, but the pain elsewhere in my body was so bad I
put concerns about the stone on hold. By May 2021, the pain was
becoming bad, and was intolerable by August 2021, when the stone was
removed surgically.
And the latest: As of June 2023, I was diagnosed with severe sleep
apnea, another challenge. As usual, I figured it out myself, after
buying and using recording SpO2 monitors during sleep. Then I
brought the results to my PCP, who ordered an official sleep test. This
diagnosis has been in the cards since the brainstem damage in 2002. The
accident in 2018 pushed me over the edge, with further injury to my
brainstem (the dAVF connected to the marginal sinus at the base of the
foramen magnum). I could tell something was wromg, as I was getting
very cold at night, and each night woke up 10x as if I had just
received a shot of adrenaline (which I did in a sense, as my brain
tried to wake my body back into breathing). And COVID cemented it;
people with bad COVID tend to have lower brain O2 levels long after
"recovery". I just have to figure new ways to camp, maybe even
backpack. But first it will be awhile before I can plan any day.
Many people seem to want to compete with me; I ask them to understand
who I am. I compete with myself. While I can still do very intense
trips, I prefer social interactions, and will often moderate what I do
so my friends can enjoy themselves; they have done the same for me.
[I received a Ph.D. in geochemistry from MIT in
1982, but my thesis was primarily in the development of analytical
techniques, principally radiochemical methods. My work career was
mostly
at a national lab, where I programmed, did analytical chemistry,
thermodynamic and radiation-scattering/sorption calculations, set up
analytical equipment, and wrote peer-reviewed papers on a very
wide variety of matters, including: programming techniques, flow and
transport, volcanology, and biomechanics. About half my funding was
obtained by
writing
proposals to solicit government grants. While I believe in the
scientific method, I am skeptical of the scientific community;
scientists are people, and many use ultra-Machiavellian methods to
secure funding.]